LENOIR, NC (February 16, 2024) ⇒ The Caldwell County Board of Commissioner presented the Moving Mountains Award to 11-year-old Paisley Beane, a student at Gamewell Elementary School.
Beane was born with an extremely rare genetic condition called Dysspondyloenchondromatosis. No one knows much about the disease because it is so rare. For Paisley, it has caused severe scoliosis, a detached retina in her left eye, short stature, and a multitude of other skeletal issues with her hips and legs.
She has undergone multiple spine, eye, and leg surgeries. In 2018, she had five surgeries. In 2022, she had plates and screws placed in her ankles and legs. In February of 2023, she had her old rods removed and received new ones which require surgical lengthening every six months. Unfortunately, she’ll have a lifetime full of future surgeries.
Beane currently goes to Pennsylvania every six months for medical attention at Shriners Hospital for Children Philadelphia and sees a physician at Shriners Hospital in Greenville, SC.
Despite the insurmountable odds she faces, Beane follows her passion and is a leader at her school. Beane’s passion is basketball. She’s a good player and is a huge Steph Curry fan. Her dream is to watch Steph Curry play. In the classroom, Beane has straight A’s. She’s on student council and led her school to collect soda can tabs to take to the Shriners Hospital.
The Moving Mountains award is presented to young people who are making a difference in their communities despite the challenges they face.
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